Oh, I feel that, since you guys have been so encouraging and involved from the start of this, I should tell you that I finished my physical rehabilitation cycle a couple of weeks ago.
I’m back to walking inside my house, with some assistance of a quad cane. Still taking my wheelchair to work for now because it’s hard to get into the building without it. Thinking of buying another quad cane to keep at the office so I can use it once I get in, but they’re pricey.
I’m still doing physical therapy and fitness once a week, but around the corner from me instead of, you know, further away in the rehab-place.
I’m definitely more aware of my limits, which makes it easier to push them, but it has also made me more aware of the fact that everything costs me a lot of energy and that I sometimes would rather choose my chair over walking so I won’t be so exhausted that I can’t do my fun things anymore.
Anyway, thank you guys for being here for me. It means a lot.
I do indeed have a form of cerebral palsy that affects the entire left side of my body and also compromises movement on the right side.
When I travel, I take my own chair with me. I guess the difficulty is that I can’t wheel my own chair, so I always need to have someone there to wheel me about. Travelling itself is alright, because I have lovely parents who drive me to the airport and assistance on the airport/plane so far have been pretty good for me.
Public transit here is hard, but I’ve found that whenever I’ve traveled, it’s been better in other countries, especially in the big cities. Once again, though, I can’t really get anywhere by myself.
So, other than being really reliant, traveling has been fairly easy for me. I love it. It also helps that I’m not afraid to open my mouth and stick my neck out to get the help I need.
Disability related questions
Hey guys, just wanted to let you know that if you have any questions related to my disability, how I’ve dealt with it, how it influences my life, or if you just have general questions about my life, you’re welcome to ask.
Does anyone remember Pimp My Ride?
Well, when I was in my first year of university, some of my classmates decided I needed to ‘Pimp My Wheelchair’. So they got me reflective plates and neon beads to put in my wheels. They made the most annoying rattling noise. I also got an old-fashioned horn so I could scare the shit out of anyone who was in my way. I don’t know what make me think of this and why I’m sharing, but it made me smile.
It gets better
I want to take a moment to write a little something about myself here, in hopes that it will help those of you who are feeling a little down.
As many of you by now know, I’m disabled. I was born 12 weeks early, and had a brain hemorrhage, which led to hemiplegia on the left side of my body. In practice, it means that I can’t really control the left side of my body and it mostly affects my motor skills.
When I was younger, it was never much of a problem. As a child, you don’t really care. I was just the little girl that walked funny and while, sure, other kids whispered and pointed, it never really bothered me much.
It got a little harder in high school. I had trouble keeping up and I couldn’t carry my book bag so others had to do it for me. It was not something they did willingly. This got worse when the government issued me a laptop so I could keep up. I was bullied. I was an easy target.
My parents had asked my school not to give me any special treatment, so one day, my class had a fieldtrip to go skiing. I, as you can imagine, cannot. So, the school wrote me down as ‘unwilling to participate’ and I had to sit in school and make extra homework as punishment. They did not understand. I was not only bullied by my classmates, but also by my school.
At this point, I was 16, and I was having such a hard time that I fell into depression, and fell hard. To a point where I told my mother I was suicidal. Things changed from then on. People see me as someone who is always smiling, and I was. But that changed everything. It was a shock to everyone. But it was out in the open, and things changed.
I got help, I got medication, I got a wheelchair (because walking was getting fairly difficult, too) and I switched schools, going into special education instead. I wasn’t on medication for long, and the changes in my life helped me get by. I finished high school, and I went to university, which is where I started to feel like myself again. This is where it truly got better.
Most of you are high schoolers, and I’m asking you to stick it out. Because when you go to university, it gets better. People are there because they want to be. They’re trying to prove themselves and trying to grow as a person, so they’re less likely to have time to bully you. They’re more likely to want to get on with you. I got on with everyone. I studied communication and multimedia design and I got my own place to live. I became, much more, an individual. I discovered I liked art when I was nineteen. You’re never too old to discover things you love. And you don’t have to study that which you love. I’ve never had a single art class in my life.
Internships during my studies made me feel appreciated for my skills. I gained self confidence, and it was my last internship that also got me the job I still have today. For me, everything turned around after high school.
I fell back into depression a year ago, but I also got back up again. Even that gets easier. Now, I own my own house, I’ve traveled all over the world, I have the internet to keep in touch with all of you, I have my own illustration business, I have a job, I provide for myself.
I felt like telling you: it does get better. It’s still hard sometimes. But it gets easier to deal with. As you get older, it’s easier to rationalize. It’ll simply be less hard. You all get hints of me struggling sometimes. I struggle often. But I like to think it makes me stronger. So, I’d like to encourage you to fight. And to talk to me if you need to. Be stronger. Be better!
I didn't know you we're in a wheel chair. you are so confident and amazing with your art that some disability can't put ou down
Haha. Thank you. I don’t always feel so confident, though. Art is kind of my escape, but it’s hard to be confident in anything. It’s kind of why I try to do impossible things so often, because when I do manage those, I can feel the slightest tingle of confidence. For art, it’s giving the people I painted, their portrait. There isn’t a better feeling in the world than that, for me.
I’m often remembered, recognised or referred to as ‘that girl in the wheelchair’, but I don’t mind. I’d rather be recognised and remembered like that, than not at all.
Bruises on my knees and thigh from falling out of the bathroom last night. Remind me not to do that again.
I had been having trouble with my leg all day and forgot about it when I emerged from the bathroom; fell, spun around, fell onto the toilet and then on the floor. Very classy. I stayed on the ground, staring at the ceiling for a while in the hallway because there was nothing to pull myself up on. And then crawled/rolled into the livingroom and sat against the couch for five minutes trying to catch my breath before I finally managed to pull myself up.
The times I forget I’m disabled are the most dangerous times of the year.
A Vantage Point of Asses, chapter 9
A Vantage Point of Asses, chapter 8
A Vantage Point of Asses, chapter 7
A Vantage Point of Asses, chapter 6
Disclaimer: all characters are fictional. So are their e-mail addresses. Don’t e-mail the OHCHR!
A Vantage Point of Asses, chapter 5
A Vantage Point of Asses, chapter 4
A Vantage Point of Asses, chapter 3